We recently connected with Jenna Benn Shersher and have shared our conversation below.

Jenna, thanks for joining us, excited to have you contributing your stories and insights. Can you open up about a risk you’ve taken – what it was like taking that risk, why you took the risk and how it turned out?

At 29, I was diagnosed with Gray Zone Lymphoma, a rare blood cancer that at the time impacted less than 200 people worldwide. The experience quickly revealed how isolating cancer can be, despite having the best medical team and a loving family by my side. Having a strong medical team and support system are just two critical components of a cancer patient’s hierarchy of needs.

Being physically and socially active had always been a source of joy for me. Suddenly, these joys were stripped away indefinitely. Desperate for human connection outside my apartment walls, I turned to virtual connections.

Even as my body, fatigued from treatment, craved movement, I missed expressing myself through dance. Though my range was limited, I could still move, albeit not as vigorously as before. So, I set up my camera, played Chubby Checker, and started doing The Twist.

This small moment sparked an idea that exceeded my wildest dreams and led to the creation of Twist Out Cancer.

Starting Twist Out Cancer involved significant personal and professional risks. First, sharing my cancer journey and vulnerabilities publicly was a major risk, exposing me to potential judgment and emotional strain. Additionally, dedicating time and resources to establish a nonprofit while recovering from cancer treatment posed financial and physical challenges. The risk was driven by a desire to combat the isolation I felt and provide a platform for others to find connection and healing through creative expression.

As always, we appreciate you sharing your insights and we’ve got a few more questions for you, but before we get to all of that can you take a minute to introduce yourself and give our readers some of your back background and context?

After cancer treatment, I decided to dedicate my life to cancer support and advocacy. As a cancer survivor, my personal experience with a rare blood cancer called Grey Zone Lymphoma profoundly influenced my career trajectory and commitment to supporting others facing similar difficulties. My journey from diagnosis to remission was marked by challenges and triumphs, which I chose to share with the world, transforming my personal story into a beacon of hope and inspiration for many.

How I Got Into My Industry

My foray into cancer advocacy and support began with my own diagnosis in 2010. Confronting the physical, emotional, and social ramifications of cancer, I realized the immense need for a supportive community and resources tailored to the unique challenges faced by young adults with cancer. This realization led to the founding of Twist Out Cancer in 2011.

### Products/Services/Creative Works

Twist Out Cancer is a nonprofit organization that offers emotional support to individuals affected by cancer through creative arts programs. The organization’s flagship program, Brushes with Cancer, pairs artists with cancer survivors, known as inspirations, to create unique pieces of art that reflect the survivor’s journey. This program not only fosters healing and self-expression but also builds a sense of community and understanding.

Problems I Solves for Clients

We address several critical issues faced by cancer patients and survivors, including:

1. **Emotional Isolation**: Cancer can be an isolating experience, and Twist Out Cancer provides a platform for individuals to connect, share their stories, and find emotional support.
2. **Creative Expression**: By facilitating artistic collaborations, the organization helps participants process their experiences in a therapeutic and meaningful way.
3. **Awareness and Education**: Through various programs and events, Twist Out Cancer raises awareness about the challenges faced by cancer patients and survivors, promoting empathy and understanding within the broader community.

### What Sets Us Apart

My unique combination of personal experience, empathetic leadership, and innovative programming distinguishes Twist Out Cancer in the field of cancer advocacy. My mission is to transform my own struggles into a source of strength and support for others . The integration of creative arts into her Twist Out Cancer’s approach provides a distinctive and impactful method for healing and community building.

### Achievements and Pride

I am particularly proud of the tangible impact my work has had on the lives of those affected by cancer. From the heartwarming stories of personal transformation to the powerful artworks created through Brushes with Cancer, the positive outcomes are numerous and deeply meaningful. The success of Twist Out Cancer’s programs, which have reached thousands of individuals across various cities and countries, stands as a testament to Twist Out Cancer’s dedication and vision.

### Key Messages for Potential Clients/Followers/Fans

For those interested in Twist Out Cancer, the main takeaways are:

1. **Empowerment Through Creativity**: The organization champions the healing power of the arts, offering innovative programs that empower individuals to express themselves and find solace in creativity.
2. **Community and Connection**: Twist Out Cancer provides a nurturing community where individuals can connect, share, and support each other, fostering a sense of belonging and understanding.
3. **Resilience and Hope**: My own journey is a powerful narrative of resilience and hope, serving as an inspiration to many and a reminder that even in the face of adversity, one can find strength and purpose.

In summary, my work is a blend of personal experience, creative innovation, and compassionate leadership, making a significant difference in the lives of those affected by cancer.

Let’s talk about resilience next – do you have a story you can share with us?

My journey has been a profound testament to resilience. One story that highlights this quality is my battle with a rare form of cancer, Grey Zone Lymphoma, which I was diagnosed with at the young age of 29.

Despite the shock and fear that accompanied my diagnosis, I faced my illness with remarkable strength and determination. I underwent aggressive chemotherapy treatments, which brought about severe physical and emotional challenges. During this time, I decided to chronicle my journey on my blog, “Kill It in the Butt.” Writing served as both a therapeutic outlet and a source of inspiration for others going through similar battles.

One particularly illustrative moment of my resilience occurred during a low point in my treatment. The chemotherapy had taken a toll on my body, leaving me weak and exhausted. Yet, I refused to let the illness define me or rob me of my spirit. Instead, I chose to channel my energy into advocacy and support for others facing cancer.

I launched “Twist Out Cancer,” a non-profit organization aimed at helping cancer patients and their loved ones cope with the emotional and psychological impact of the disease. Through this initiative, I created a community where people could share their stories, offer support, and find strength in solidarity.

My resilience was not just in my ability to endure the physical rigors of cancer treatment but also in my capacity to transform my pain into a force for good. I turned my personal struggle into a mission to uplift others, embodying the essence of resilience—rising above adversity, finding purpose in hardship, and fostering hope and connection in the face of life’s most daunting challenges.

My story is a powerful reminder that resilience is not just about surviving difficult times but also about using those experiences to make a positive impact on the world around you.

What’s been the most effective strategy for growing your clientele?

Growing Twist Out Cancer’s clientele involves strategic actions that can expand reach, increase engagement, and build a strong community. Here’s a comprehensive strategy to achieve this:

1. **Enhance Online Presence**
– **Website Optimization:** Ensure the website is user-friendly, mobile-responsive, and optimized for search engines (SEO). Include clear calls to action, success stories, and resources.
– **Content Marketing:** Regularly update the blog with relevant content, including impact stories, expert interviews, and helpful tips for those affected by cancer. Use keywords to improve search engine rankings.
– **Social Media Engagement:** Utilize platforms like Facebook, Instagram, Twitter, and LinkedIn to share content, engage with followers, and promote events. Use targeted ads to reach specific demographics.
– **Email Marketing:** Build a robust email list and send regular newsletters with updates, success stories, upcoming events, and ways to get involved.

2. **Community Building and Outreach**
– **Support Groups:** Create and facilitate online and offline support groups for cancer patients and their loved ones. Partner with hospitals, cancer centers, and community organizations to reach more people.
– **Workshops and Events:** Host regular workshops, webinars, and events focusing on art therapy, mental health, and support for cancer patients. Promote these events through social media and local community boards.
– **Partnerships and Collaborations:** Partner with other non-profits, healthcare providers, and businesses to expand reach. Collaborations can include joint events, fundraisers, and cross-promotion.

3. **Leverage Influencers and Key Stakeholders**
– **Influencer Marketing:** Partner with influencers and key stakeholders in the health, wellness, and cancer survivor communities who can share your message with a broader audience.

4. **Offer Value-Added Services**
– **Resources and Tools:** Provide valuable resources such as downloadable guides, toolkits, and interactive tools that can help those affected by cancer.
– **Innovative Programs:** Develop innovative programs that address the needs of your clientele, such as art therapy sessions, mentorship programs, and customized support plans.
5. **Focus on Impact and Testimonials**
– **Success Stories:** Share powerful testimonials and success stories from clients who have benefited from your services. Use videos, blogs, and social media posts to highlight these stories.
– **Impact Reports:** Publish annual impact reports that showcase the measurable outcomes of your programs and initiatives. Share these reports with stakeholders, donors, and the community.

6. **Fundraising and Grants**
– **Crowdfunding Campaigns:** Launch crowdfunding campaigns for specific projects or needs.
– **Grant Applications:** Apply for grants from foundations and organizations that support cancer-related initiatives. A dedicated team or consultant can help identify and apply for these opportunities.

7. **Engage and Retain Members**
– **Personalized Communication:** Maintain personalized communication with members, checking in on their progress and offering support.
– **Membership Benefits:** Offer benefits to members, such as exclusive access to events, resources, and support groups.
-Regularly meet with donors and board members to keep them actively engaged in the mission and work.

8. **Monitoring and Evaluation**
– **Feedback Mechanism:** Implement a system for collecting feedback from clients to understand their needs and improve services.
– **Data Analytics:** Use data analytics to track engagement, measure impact, and refine strategies based on what works best.

By implementing these strategies, Twist Out Cancer has effectively grown our clientele, extended our reach, and deepened its impact on the lives of those affected by cancer.

Contact Info:

• Website: https://www.twistoutcancer.org
• Instagram: twistoutcancer
• Facebook: twistoutcancer
• Linkedin: Jenna Benn Shersher
• Twitter: twistoutcancer
• Youtube: twistoutcancer

Image Credits

Eileen O’Hare